Some healthy people ask what it's like to live with severe ME/CFS and Fibromyalgia. Living with severe chronic illness my dreams are simple. Conquering basic tasks become monumental achievements and things to be celebrated. Here I try to describe just a few of my dreams:
‘I
DREAM OF SIMPLE THINGS’
©
2016 By Shiloh Moore
(13/1/16)
I
dream of doing simple things
Even
chores and basic tasks
Like
to do things independently
And
not always have to ask
I’d
like to really cook
And
not just have to defrost
To
eat sitting up with company
And
painlessly consume without cost
To
have a daily shower
And
shave my legs with ease
Clean
my teeth for two whole minutes
Tame
my wild hair to look less teased
To
do all my own shopping
For
groceries and necessities
To
buy my own choice of things
And
treat myself occasionally
To
be able to sit up for visitors
Not
to have to lie down all the time
To
go out for coffee or a social meal
And
stay for a decent while
To
create art while sitting up
With
no need to lie down throughout
To
have freedom to fearlessly create
Without
a long term pain payout
To
type while I can sit up
For
as long as I wish each day
To
use a phone to text and talk
Without
dead arms, neck cramps, and strain
To
walk a fair distance and stand
Without
instant pain and feeling faint
To
exercise and feel good
To
help with my Diabetes and weight
To
need less than fourteen hours sleep
And
to wake up feeling strong and refreshed
To
feel bright and alert every day
Rather
than tired and needing rest
To
lie down perfectly still
Yet
to feel no intense constant pain
Is
an experience I have forgotten
And
can only dream of knowing again
To
be able to joke and to smile
With
no face pain limiting my laugh
To
talk comfortably, to be truly me
Is
this really too much to ask?
My
dreams may seem very simple
But
I’ll celebrate if any come true
The
truth is I appreciate all I can do
And
I try not to fear losing that too
Disclaimer: Feel free to share this link, but please do not reproduce
this poem without consent from the author. Shiloh Moore can be contacted
at her website at:
http://shilohmoore.wix.com/byshi
